These are the words that came bursting out of T's mouth as her little brother says in his own way "Dih - Duh - Dee"...translation Trinity.
Tuesday, November 18, 2008
funniest.thing.ever
The pictures kinda speak for themselves, but, I will give you a quick bio. Shannon grew his beard out shortly after T's 5th birthday party. He decided after a month of donning the mountain man persona that it was time to once again reinvent himself....and with the help of Trinity and his trusty shaver, he did just that about 5 times in a span of 30 minutes. I hope you enjoy it as much as I did. (Picture #5+6 are in my opinion "pee your pants" funny....it least...for me they were! LOL - Shannon is going to kill me.....)
Mountain Man Shan
Miss Trinity hard at work!
Whatchyoulookinatpunk?
Hahaha, better and better *uh-oh, I peed a little*
Say hello to my little friend....
So trusting...
It wasn't that bad
There's my boy!
Monday, November 17, 2008
Giardia??? WHAT?
Tristan had his appointment with the Gastro Ped today. A little background on little t's poop...because I know you all are DYING to know! He has NEVER had a solid stool in his life...ok, I am wrong, with the exception of maybe 2 and those were a fluke thing. He has a bowel movement 6-8 times a day, and there is ALWAYS undigested food in his stool. Everytime he eats, he poops. We used to think it was so clever, "wow, he has his bm's on a schedule...he is going to be EASY to potty train!" Little did we know that it was because he was just passing the food directly in and out...We sent in 3 samples to his Ped to be tested for any blood, abnormalities and the such. It came back positive for something called Giardia. Giardia is a waterborne parasite that causes EXTREME diarrea and fatigue. The GI doesn't seem to think that this is what has been causing his poopy issues, but, it doesn't help. Right now, they are leaning more on the side of Celiac Disease or possibly Crohns, but we have to treat the parasite first...so that means antibiotics for 10 days and then they have to scope him. I will post again once we discover this craziness....but, for the meantime, keep us in your thoughts and prayers, as always, we are very thankful for them!
Monday, November 10, 2008
BLAH
i am sick. yuck. do mom's get sick days? ug. how much diarrea can come out of one person? i mean really? i need to eat something....hold on *BLLLBLBLAHALHKL:HA* yeah, better not eat anything. so, if i don't answer the phone, i can garuntee i am a slave to the potty. and letters, just address them to
jenn hydeman
the potty
poopy alley
hell 969696
jenn hydeman
the potty
poopy alley
hell 969696
Friday, November 7, 2008
Wanna know how water is made??? Ask T.
T : "Know how they make water??"
ME: "How WHO makes water?"
T: "You know, them...people."
ME: "Ok, sure, how do they make water?"
T: " Well, they buy ice - put it into this recycled bottle *pointing to her empty water bottle* and let it sit out. Then, in the morning...BAM, water."
ME: "Bam huh?...just like that?
T: "Just like that."
ME: "Well, how do THEY make waterfalls then."
T : *without any hesitation* "Oh, I don't know that, God takes care of the big stuff."
ME: "How WHO makes water?"
T: "You know, them...people."
ME: "Ok, sure, how do they make water?"
T: " Well, they buy ice - put it into this recycled bottle *pointing to her empty water bottle* and let it sit out. Then, in the morning...BAM, water."
ME: "Bam huh?...just like that?
T: "Just like that."
ME: "Well, how do THEY make waterfalls then."
T : *without any hesitation* "Oh, I don't know that, God takes care of the big stuff."
5 going on infinity
When she was only 4 days old, we went to the store close to our house, everyone kept stopping to see her, EVERYONE...it was kinda weird at first, but then we saw the joy that she brought in everyone and we welcomed it. She has always had an interest in people. She has NEVER been shy or afraid. Through out toddlerhood, she would always bring smiles to peoples faces, she would talk to people like an adult talks to another adult and we were constantly being told how she is so comfortable and enjoyable to be around. She is really artsy and senstive, and we just love her personality. Don't get me wrong, she is HIGH energy, but, I think a lot of that stems from how bright of a light she is.
Autism. I swear, she knows more about this than me. She understands it, knows her brother is not retarted, not slow, or even disabled. She pushes him to try his hardest, she is his best therapist, let me tell you what. She is proud when he accomplishes a task that he has been working so hard at. She stands up for him when others are mean. She is not embarassed by or even put off by his challenges, rather, laughs it off by saying in a cute voice "TRISTAN!!!! You silly bubbub." 
We continue to watch her change and grow into a completely amazing person. From the time she said DADA to Shannon at 3 months, to these very deep conversations that we find ourselves having, we are excited to see what she will come up with next. She is definitely wiser than most adults I know, ok, and cuter too!
Saturday, November 1, 2008
Oh,, I just love her....
I just get this "I wanna eat you up" feeling everytime I see this face.
I just love her. SO much. Thank you to everyone who has been praying for us, for her....she is feeling SOOOO much better and is back to her old sassy self. The Lord really does challenge us in ways that we may not understand, but the end result really brings us clarity. I am thankful to have such great friends and family and such a strong support system.
T is amazing. She is smart, witty, compassionate and wiser than she will ever know. She talks SOOO much, but I love it. Whenever I find myself getting the least bit annoyed by her endless jargon, I think about my Tristan, and how he is wordless....I remember to be thankful for her voice. We are so very thankful to have her in our lives, and will forever be greatful to be her parents.
T is amazing. She is smart, witty, compassionate and wiser than she will ever know. She talks SOOO much, but I love it. Whenever I find myself getting the least bit annoyed by her endless jargon, I think about my Tristan, and how he is wordless....I remember to be thankful for her voice. We are so very thankful to have her in our lives, and will forever be greatful to be her parents.
Thursday, October 30, 2008
Having some fun in the sand!
T's Observations
I love children's observations, how that little brain works. Trinity's brain FASCINATES me! She recently lost a peice of paper, and her remote...she comes in and says
T: "HEY, that's weird..."(very concerned look on her face)
ME: "What's so weird baby?"
T: "First, I can't find the silly pamote (AKA REMOTE), now, my peice of paper is missing....weirder and weirder"
ME: (with a smile) "What do you think happened to them???"
T: "If I had to take a guess what it is, it would be, like a ghost sneeking in our house, grabbing our remote and paper and hiding it....HEY, maybe they took your keys too?? You know, how you are always losing those!"
So, keep your eyes open for ghosts coming in and hiding your things...Hey, maybe that's where that missing $200 from our account went??
Monday, October 27, 2008
Prayers, Prayers everywhere....send us some if you have to spare!
WOWZA...we have been hit by a lot lately, but, nothing that we can't handle right? It doesn't always feel that way, we are trying to stay positive and appreciate everything that all of our friends and family have done to help. I need to call upon you all again for a special prayer...2 actually. The first...if you could pray for Trinity. She is going through a tough time right now, and she needs all the positive and loving energy you can send her way. Please pray that she can find calm and peace. The next is for Tristan. He has surgery for his ears on Wednesday. He has been being seen by an amazing ENT and we basically found out that he has had blockage for God only knows how long. Coupled with the fluid in his ears, he has been virtually unable to hear us at times...which explains the language delay. This Wednesday..yes, 2 days from now...he has his surgery, they will remove the fluid and blockage and put in tubes. Please pray that he does well before, during and after surgery. I will post more later. Thanks for your prayers.
Saturday, October 25, 2008
Heaven's Very Special Child
This poem gets me through some of the ROUGHEST times...I hope you all enjoy it as much as we do!
"A meeting was held quite far from earth
It's time again for another birth,
said the angels to the Lord above.
This special child will need much love.
His progress may seem very slow,
accomplishments, he may not show
and he'll require extra care
from the folks he meets down there.
He may not run or laugh or play
his thoughts may seem quite far away,
In many ways he won't adaptand
he'll be known as handicapped.
So let's be careful where he's sent,
we want his life to be content.
Please Lord, find the parents who,
will do a special job for you.
They will not realize right away
the leading role they're asked to play
but with this child sent from above
comes stronger faith and richer love.
And soon they'll know the priveledge
given in caring for this gift from Heaven.
Their precious charge, so meek, so mild
is Heaven's very special child."
Edna Massimilla
Thursday, October 16, 2008
Monday, October 6, 2008
Saturday, October 4, 2008
Happy Birthday Trinity!!
Trinity turned 5 years old today. What a GREAT celebration. We threw a Superhero themed birthday party and were the "Super" family...I was Lois Lane at a party LOL. We encouraged guests to come dressed as their favorite crime fighters and we were SO pleased that many of them did. I love birthdays. The gathering of family and friends to celebrate a life well lived.















Trinity, you are SOOO amazing to me. I appreciate our time together. I adore you and am so proud of the little girl you have become. You were so thankful for all of your guests and the gifts that they brought. I love that you kept saying "OH, it's just what I wanted...." or even better "I have wanted this my WHOLE life, THANK YOU!!" it was really fun to watch you open the presents. You looked SO cute in your supergirl costume.
The kids played games and earned prizes, it was really fun to see them enjoying themselves. After most everyone left except for our closest friends, we were excited to find a beautiful rainbow had filled the sky above our house. I like to think that it was my Grandmother wishing miss T a happy day. It was really amazing to see.
Trinity spent the end of her night playing with her 3 best friends, Tatum, Jillian and Tristan. They were racing down the slides...Tristan thought they were hilarious. Then he took his turn.
Jillian stayed a bit and they took a bath, it's times like this that I wish I lived closer to friends and family :( It was nice to see all of you, thank you SOOO much for sharing our special day, Trinity and ALL of us had a wonderful time.
Thursday, October 2, 2008
Random Thoughts in this crazy mind of mine....
So, I sit here at the computer...it's 12:30ish AM and I am exhausted and can't sleep. My insomnia is back, YIPPIE *note the sarcasm*....I am thinking again...oh no...when I get in my head, it is SOOO terribly hard to pull myself out. I am fearful. I am worrisome. I am scared. My biggest, or at least one of my MANY biggest fears is that t is taken advantage of because of his inability to communicate. It has been KILLING me thinking about it. I actually think I may try and get some help. I am feeling really depressed lately, and I just want to feel normal again, whatever that is. I never thought I would become "that mom" but sometimes, I feel it urking up on me. I find myself consumed with the conversations of autism. I stay up late...googling all that I can to learn more and try and be the best advocate for my son that I can be. In the midst of all of this, I feel sometimes...and I can't believe I am going to share this with you....I feel that I may be neglecting my other 2 very important people in my life..Shannon and Trinity. I just want so much to be whole...does that make any sense? I know SO many parents have it SO much harder...I don't deserve to be feeling sorry for myself.
In the midst of this cloud I have to share some wonderful news. We were approved for Long Term Care!!! This is H U G E. It means there are so many more therapies and resources at our fingertips. It means that little t does not have to give up his therapies when he starts preschool...it means if I decide to homeschool him, he can still have ST / OT / PT and more! It means Respite. The true definition of respite is this : A BRIEF INTERVAL OF REST OR RELIEF. We are approved for 720 hours of respite by a provider that we get to interview. They will come to the house, on trips if we need help, to doctor's appointments where I would have needed Shannon to take off...it is huge. On those days when I can't even go to the bathroom without worrying if t is getting up on the table to hang on the light....I don't have to worry. Trinity gets to be a normal kid and do things with mommy again. She gets to just finish her coloring instead of "HURRY...go check on your brother!!! PLEASE!!!" She gets to be a kid, not her brother's keeper. I would pay a million dollars for that. We are all feeling so optimistic about this, that hopefully...my hole with start to be a bit closer to the surface. That hopefully, I can move on, move past and look forward at a rate that I am used to. I am hopeful. Please pray for us, pray that everything will happen as it should. Pray that we can find some solice and "normalcy" in our sometimes overwhelmingly crazy lives. Pray that I can find serenity. Thank you for reading...thank you for being here with me on this roller coaster of a ride that I lovingly call my journey. I love you all and appreciate your support.
In the midst of this cloud I have to share some wonderful news. We were approved for Long Term Care!!! This is H U G E. It means there are so many more therapies and resources at our fingertips. It means that little t does not have to give up his therapies when he starts preschool...it means if I decide to homeschool him, he can still have ST / OT / PT and more! It means Respite. The true definition of respite is this : A BRIEF INTERVAL OF REST OR RELIEF. We are approved for 720 hours of respite by a provider that we get to interview. They will come to the house, on trips if we need help, to doctor's appointments where I would have needed Shannon to take off...it is huge. On those days when I can't even go to the bathroom without worrying if t is getting up on the table to hang on the light....I don't have to worry. Trinity gets to be a normal kid and do things with mommy again. She gets to just finish her coloring instead of "HURRY...go check on your brother!!! PLEASE!!!" She gets to be a kid, not her brother's keeper. I would pay a million dollars for that. We are all feeling so optimistic about this, that hopefully...my hole with start to be a bit closer to the surface. That hopefully, I can move on, move past and look forward at a rate that I am used to. I am hopeful. Please pray for us, pray that everything will happen as it should. Pray that we can find some solice and "normalcy" in our sometimes overwhelmingly crazy lives. Pray that I can find serenity. Thank you for reading...thank you for being here with me on this roller coaster of a ride that I lovingly call my journey. I love you all and appreciate your support.
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