Thursday, October 2, 2008

Random Thoughts in this crazy mind of mine....

So, I sit here at the computer...it's 12:30ish AM and I am exhausted and can't sleep. My insomnia is back, YIPPIE *note the sarcasm*....I am thinking again...oh no...when I get in my head, it is SOOO terribly hard to pull myself out. I am fearful. I am worrisome. I am scared. My biggest, or at least one of my MANY biggest fears is that t is taken advantage of because of his inability to communicate. It has been KILLING me thinking about it. I actually think I may try and get some help. I am feeling really depressed lately, and I just want to feel normal again, whatever that is. I never thought I would become "that mom" but sometimes, I feel it urking up on me. I find myself consumed with the conversations of autism. I stay up late...googling all that I can to learn more and try and be the best advocate for my son that I can be. In the midst of all of this, I feel sometimes...and I can't believe I am going to share this with you....I feel that I may be neglecting my other 2 very important people in my life..Shannon and Trinity. I just want so much to be whole...does that make any sense? I know SO many parents have it SO much harder...I don't deserve to be feeling sorry for myself.

In the midst of this cloud I have to share some wonderful news. We were approved for Long Term Care!!! This is H U G E. It means there are so many more therapies and resources at our fingertips. It means that little t does not have to give up his therapies when he starts preschool...it means if I decide to homeschool him, he can still have ST / OT / PT and more! It means Respite. The true definition of respite is this : A BRIEF INTERVAL OF REST OR RELIEF. We are approved for 720 hours of respite by a provider that we get to interview. They will come to the house, on trips if we need help, to doctor's appointments where I would have needed Shannon to take off...it is huge. On those days when I can't even go to the bathroom without worrying if t is getting up on the table to hang on the light....I don't have to worry. Trinity gets to be a normal kid and do things with mommy again. She gets to just finish her coloring instead of "HURRY...go check on your brother!!! PLEASE!!!" She gets to be a kid, not her brother's keeper. I would pay a million dollars for that. We are all feeling so optimistic about this, that hopefully...my hole with start to be a bit closer to the surface. That hopefully, I can move on, move past and look forward at a rate that I am used to. I am hopeful. Please pray for us, pray that everything will happen as it should. Pray that we can find some solice and "normalcy" in our sometimes overwhelmingly crazy lives. Pray that I can find serenity. Thank you for reading...thank you for being here with me on this roller coaster of a ride that I lovingly call my journey. I love you all and appreciate your support.

3 comments:

Jenn.y.Fur said...

Don't feel bad for feeling sorry for yourself. After seeing Tristan climb on EVERYTHING.. (especially the 3 times I caught him..on top of his highchair, on the table with the candles and on top of the big table. I didn't tell you about the third... but I got him down and he was good! NO need to worry...) :o) Anywho... Tristan is an amazing boy and I have reason to believe he wouldn't be that far if he didn't have a mother as dedicated as you are to helping him. I loved that he played with his shapey thingy with me, and that he was signing with me (& the video) baby, sleep, eat....etc.
And I know what you mean about Trinity being "brother's keeper"... Jillian make sure brother doesn't follow me upstairs... Jillian where's brother?...Jillian can you play with brother too?...Jillian make sure brother doesn't go past the sidewalk... Autism or not... I think all older siblings become in a small way "the keeper". The younger kids just LOVE their older siblings and we take advantage of that.. I know I do at times... he'll listen to her before he listens to me!
Before this short story becomes a novel, I know that both Shannon and Trinity know that Tristan needs just a little bit more attention and they know they'll get their mommy time too. Your family is amazing! I love you guys and am happy to help in anyway I can. Just call :o)

The End.

if you want an autograph... I'm happy to do so...

Author: Jennifer Ping
circa 2008

ok seriously.. done...
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO

Jenn Hydeman said...

Thanks J, It really means a lot to have good friends, especially right now!

Jenn Hydeman said...
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