Wednesday, August 18, 2010

This is our journey...we have to stay on track.

Everyday, it's a journey for us. We balance our life with Trinity and helping her to be the happy and well adjusted caring kiddo that she is. We strive to provide all the support and love that she needs and hope that she understands why her sibling dynamic is so different than her friends. We hope that she will always love him the way she does now, and that she will never resent this life or what we expect from her. We love our children. We hope that everything we do for them is seen and felt. I just know that one day, it will pay off...it pays off everyday, little by little...but the jackpot, the big one...I hope we hit it one day and Tristan loses his autism diagnosis completely.

Today...I am a little overwhelmed. We have had doctor's appointments up the wazoo, and now, we have MORE allergens for little t. Tristan has completed another round of allergy testing. We have a whole new list of things he can and can't eat...the bigger list is what he can't eat. He is now on a no Phenol diet...which is REALLY stinkin' hard. Anyone out there that is familiar with this diet, help me out please, cause I am overwhelmed. I stumbled across a great blog today, one of another mother who has and is traveling through this journey like we are. She posted a letter that I wanted to share. It touched me, to my core really, and I hope that you read it, if you are going through a similar situation, that you can absorb it, and move on to help your little one. We are trying, everyday, to find a way to help Tristan the best we can. I hope that we will find that one thing that does it for him, but I know it's not going to be that easy...until then, we will keep searching.

Thank you to all our friends who have offered help, to family who is understanding and accommodating...thank you to everyone who loves us, and our children for who they are. We think they are pretty great, and will only get greater with time.

An Open Letter
By Jon Gilbert

The other day that mom with the little boy who was making so much commotion in the fast food restaurant noticed you staring at her. He was a handful, wasn't he? His screaming was incessant

and the way he was challenging his mother: unacceptable. It's understandable that you would never allow your own child to holler at you like that, or bounce between the booths. You found yourself wondering what would possess her to bring an unruly child like that out into public in the first place. As your respectful children stood beside you in silence, you wondered when he would just be quiet. And you wondered what kind of mother she must be.

If you only knew what that mom wonders.

She wonders what she can do to get him to stop screaming. Sometimes it lasts all day, and lately, it's been almost every day. Then, while you put your kids back in the car, she wonders if he'll keep his seat belt on for the entire ride. You will get them home and they'll head right upstairs to play together nicely. She wonders if he'll decide it's time to begin switching the lights on and off repeatedly, or throw to everything that's on the desk onto to the floor.

When your kids fall down, you can ask them where it hurts and they can tell you. It hurts the other mom that all she can do is hold her little boy and wonder when he'll stop crying. Later, while you wonder what story you will read to your child tonight, the mom you know nothing about will once again cry herself to sleep in her husband's arms.

You wonder later why God would give any child to "that kind" of parent, yet she's thankful that God chose her. You judge the stranger based on that one incident, while she wonders why you didn't just ask if you could help. She probably wouldn't have taken it, but she would have appreciated the gesture.

Your four-year-old has mastered the art of conversation. She find's it triumphant that her son mumbles, "go school" and "want eat." You already wonder what your child's high school prom will be like. Meanwhile the other mom wonders when her four-year-old will potty train.

You wonder who your little one will marry some day, while the mom with the rambunctious son worries that he may not graduate from high school. You plan to send your child to the best university, and the lady that you
never met wonders if she'll have to care for hers as an adult.

While she's not jealous that your kids obey, talk and dream, she does wonder what it would be like to be able to call her son "normal." He is who he is. There's no altering that, and his mother wouldn't change him for the world. But feeling your eyes burn through her melts her soul. She does the best he can, and wonders why you judge them both.

She doesn't ask for your sympathy, just your understanding. Her family puts a lot of time and effort into helping him become the best somebody he can be. You don't see it, but that's all right, because his mom sees it every day. She sees the victories as well as the defeats.

You cast your judgment based on the one day you saw the unruly child in public. No one faults you for that, because the other mom used to do the same thing, back before her son's diagnosis. All the mom asks of you today is compassion and consideration.

Tonight, when you tuck your kids into bed, be thankful for the children you have and for who they are. Understand that, while you are getting butterfly kisses from your little angel, there are parents wondering when theirs will be able to say the words, "I love you."

1 comment:

Anonymous said...

Oh God, her last line just killed me.