Thursday, October 30, 2008

Having some fun in the sand!

Shannon and I have been working FURIOUSLY on the backyard. We have put in a border, rocks, seed and even a SANDBOX!!! T and t are so happy to have an outdoor space to play that doesn't involve dust and dog poop...I don't blame them, do you? Albert came over to help out and they dumped load after load in the pit, and even some on T! Tristan took it as an opportunity to play "King of the Mountain".

T's Observations

I love children's observations, how that little brain works. Trinity's brain FASCINATES me! She recently lost a peice of paper, and her remote...she comes in and says

T: "HEY, that's weird..."(very concerned look on her face)

ME: "What's so weird baby?"

T: "First, I can't find the silly pamote (AKA REMOTE), now, my peice of paper is missing....weirder and weirder"

ME: (with a smile) "What do you think happened to them???"

T: "If I had to take a guess what it is, it would be, like a ghost sneeking in our house, grabbing our remote and paper and hiding it....HEY, maybe they took your keys too?? You know, how you are always losing those!"

So, keep your eyes open for ghosts coming in and hiding your things...Hey, maybe that's where that missing $200 from our account went??

Monday, October 27, 2008

Prayers, Prayers everywhere....send us some if you have to spare!

WOWZA...we have been hit by a lot lately, but, nothing that we can't handle right? It doesn't always feel that way, we are trying to stay positive and appreciate everything that all of our friends and family have done to help. I need to call upon you all again for a special prayer...2 actually. The first...if you could pray for Trinity. She is going through a tough time right now, and she needs all the positive and loving energy you can send her way. Please pray that she can find calm and peace. The next is for Tristan. He has surgery for his ears on Wednesday. He has been being seen by an amazing ENT and we basically found out that he has had blockage for God only knows how long. Coupled with the fluid in his ears, he has been virtually unable to hear us at times...which explains the language delay. This Wednesday..yes, 2 days from now...he has his surgery, they will remove the fluid and blockage and put in tubes. Please pray that he does well before, during and after surgery. I will post more later. Thanks for your prayers.

Saturday, October 25, 2008

Heaven's Very Special Child

This poem gets me through some of the ROUGHEST times...I hope you all enjoy it as much as we do!

"A meeting was held quite far from earth

It's time again for another birth,

said the angels to the Lord above.

This special child will need much love.

His progress may seem very slow,

accomplishments, he may not show

and he'll require extra care

from the folks he meets down there.

He may not run or laugh or play

his thoughts may seem quite far away,

In many ways he won't adaptand

he'll be known as handicapped.

So let's be careful where he's sent,

we want his life to be content.

Please Lord, find the parents who,

will do a special job for you.

They will not realize right away

the leading role they're asked to play

but with this child sent from above

comes stronger faith and richer love.

And soon they'll know the priveledge

given in caring for this gift from Heaven.

Their precious charge, so meek, so mild

is Heaven's very special child."

Edna Massimilla

Thursday, October 16, 2008


Dennis Leary has NEVER been a favorite person of mine...but now, he is definitely on my S*IT list. Read Here and let me know what you think.

Saturday, October 4, 2008

Happy Birthday Trinity!!

Trinity turned 5 years old today. What a GREAT celebration. We threw a Superhero themed birthday party and were the "Super" family...I was Lois Lane at a party LOL. We encouraged guests to come dressed as their favorite crime fighters and we were SO pleased that many of them did. I love birthdays. The gathering of family and friends to celebrate a life well lived.

Trinity, you are SOOO amazing to me. I appreciate our time together. I adore you and am so proud of the little girl you have become. You were so thankful for all of your guests and the gifts that they brought. I love that you kept saying "OH, it's just what I wanted...." or even better "I have wanted this my WHOLE life, THANK YOU!!" it was really fun to watch you open the presents. You looked SO cute in your supergirl costume.

The kids played games and earned prizes, it was really fun to see them enjoying themselves. After most everyone left except for our closest friends, we were excited to find a beautiful rainbow had filled the sky above our house. I like to think that it was my Grandmother wishing miss T a happy day. It was really amazing to see.

Trinity spent the end of her night playing with her 3 best friends, Tatum, Jillian and Tristan. They were racing down the slides...Tristan thought they were hilarious. Then he took his turn.

Jillian stayed a bit and they took a bath, it's times like this that I wish I lived closer to friends and family :( It was nice to see all of you, thank you SOOO much for sharing our special day, Trinity and ALL of us had a wonderful time.

Thursday, October 2, 2008

Random Thoughts in this crazy mind of mine....

So, I sit here at the's 12:30ish AM and I am exhausted and can't sleep. My insomnia is back, YIPPIE *note the sarcasm*....I am thinking again...oh no...when I get in my head, it is SOOO terribly hard to pull myself out. I am fearful. I am worrisome. I am scared. My biggest, or at least one of my MANY biggest fears is that t is taken advantage of because of his inability to communicate. It has been KILLING me thinking about it. I actually think I may try and get some help. I am feeling really depressed lately, and I just want to feel normal again, whatever that is. I never thought I would become "that mom" but sometimes, I feel it urking up on me. I find myself consumed with the conversations of autism. I stay up late...googling all that I can to learn more and try and be the best advocate for my son that I can be. In the midst of all of this, I feel sometimes...and I can't believe I am going to share this with you....I feel that I may be neglecting my other 2 very important people in my life..Shannon and Trinity. I just want so much to be whole...does that make any sense? I know SO many parents have it SO much harder...I don't deserve to be feeling sorry for myself.

In the midst of this cloud I have to share some wonderful news. We were approved for Long Term Care!!! This is H U G E. It means there are so many more therapies and resources at our fingertips. It means that little t does not have to give up his therapies when he starts means if I decide to homeschool him, he can still have ST / OT / PT and more! It means Respite. The true definition of respite is this : A BRIEF INTERVAL OF REST OR RELIEF. We are approved for 720 hours of respite by a provider that we get to interview. They will come to the house, on trips if we need help, to doctor's appointments where I would have needed Shannon to take is huge. On those days when I can't even go to the bathroom without worrying if t is getting up on the table to hang on the light....I don't have to worry. Trinity gets to be a normal kid and do things with mommy again. She gets to just finish her coloring instead of "HURRY...go check on your brother!!! PLEASE!!!" She gets to be a kid, not her brother's keeper. I would pay a million dollars for that. We are all feeling so optimistic about this, that hole with start to be a bit closer to the surface. That hopefully, I can move on, move past and look forward at a rate that I am used to. I am hopeful. Please pray for us, pray that everything will happen as it should. Pray that we can find some solice and "normalcy" in our sometimes overwhelmingly crazy lives. Pray that I can find serenity. Thank you for reading...thank you for being here with me on this roller coaster of a ride that I lovingly call my journey. I love you all and appreciate your support.